Tuesday, June 16, 2009


Jason's friend Paula from the PIP program through Utah School for the Deaf and Blind, came to visit again today. We discussed all the stuff that he has accomplished in the last 2 weeks. He's learned how to jump and actually get his chubby little feet off the ground. He's signed "No" at his Dad when Daddy was trying to make him behave. He's trying to talk but if you weren't with him everyday you wouldn't be able to tell he's actually trying to communicate.

She did a little playing with him, and tried to get a little bit of communication from him. He just likes to do his own thing, and not have anyone try to direct him. So our next assignment is to continue speaking to him when he's actually paying attention. The only time that really is, is when he's having his diaper changed. So we will have to try and get as much info into a 5 minute diaper change as possible. She also tried to get him to tell her what he wanted. He didn't even try to talk or point at what he wanted to play with, he just threw a fit. So unfortunately we'll be pushing him toward communicating by trying to get him to make some decisions. He likes everything so instead of actually making a decision he just changes what he's doing. Hopefully he will start doing a little more communication.


gaz said...

hi there
i did a quick search for fellow bloggers who have kids with stickler syndrome.
there aren't many of us out there from what i can see! :-]
interesting to read your story. i have a 4 year old son with type 1 stickler.
anyway - just wanted to say hi. i don't like browsing blogs without letting people know i've been reading - that's kinda spooky.
drop by my blog and say hi.

LutzFam said...

Thank you gaz!! I've done that myself, and found a few people with sticklers but not to many parents of children. I'm excited to see someone else who wants to share their experiences with there kids as much as I do.